Butterflies, Babies and Tornadoes
This weekend, the EB (Epidermolysis Bullosa) community lost one of our smallest icons. Tripp Roth died in his mother’s arms. He was two and a half. Tripp had the Junctional form of EB, the deadliest form.
I may have provided a link to her blog this past October, but if you’re interested in reading, here is a link to his Legacy page, which links back to Courtney’s blog.
His funeral is scheduled for tomorrow.
In other EB news, a US version of this documentary aired over the weekend on TLC.. however, I must admit I like the UK version MUCH better. The narrator even pronounced Epidermolysis Bullosa correctly (which, unfortunately, I cannot say about the US narrator).
Watch.. and learn more.